New Charity Shop opening in Barcelona!

More than 100 people gathered to celebrate the opening of the new Charity Shop in the city of Barcelona.  Inspired by the English charity shop concept this new shop…

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Thanks to the #IHAVEUNDRESSED campaign millions of new people know what it is like to live with this disease

#IHAVEUNDRESSED was launched to raise awareness worldwide for EB, in the hope that the day to day of living with this condition can be made just a little bit…

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I have learnt to accept the condition as a part of me without letting it control my life

Lena is Austrian; she is 25 years old and has EB.  For the last year Lena has been working at the charity helping with our fundraising campaigns, inspiring so…

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