Butterfly Children’s Charity Golf Tournaments 2022

28 July, 2022

The Butterfly Children’s Charity golf tournaments ang galas return after two years of cancelled galas due to the coronavirus pandemic.  These tournaments are vital for raising awareness and important funding which contribute directly to improving the quality of life for families with EB.

The charity is delighted to announce that the first tournament will take place on Wednesday the 10th of August at the Marbella Club resort and the second at the Aloha Golf Club on the 17th of September.

EB or Butterfly Skin is a rare, degenerative and incurable condition that affects over 500 people in Spain.

For reservations, please contact:

eventos@debra.es or call 674 11 19 52

  • Marbella Club Golf tournament 120 euros
  • Aloha Golf Club tournament 85 euros

You can also lend your support to this worthwhile cause by donating prizes on Fila 0.

Charity Gala evenings

These events will take place on the 13th of August and the 17th of September at the Aloha Golf Club.  The gala evenings are wonderful events that include dinner, music and prizes.

“The 17th of September Gala evening also marks the 20th Anniversary of the charity which was born to improve the quality of life for families”, said Ana Maria Ponce, marketing and fundraising executive for the charity.

Tickets are available for 65 euros.

Compartir en redes sociales:



Síguenos en redes

Otros artículos relacionados

DEBRA the Butterfly Children’s Charity is pleased to launch the “Living with Butterfly Skin” campaign: a documentary that encourages you to empathise with a family with Butterfly Skin

This organisation is the only support group for families with Butterfly Skin in Spain: a rare and incurable disease, which currently affects more than 500 people in Spain.  It is characterised by the extreme fragility of the skin, leading to lifelong pain and disability.   A short documentary and a

Leer más

DEBRA ON THE ROAD: Home visits between May and July

At DEBRA we believe it is fundamental to be there to support families who have given birth to a baby with Butterfly Skin: to be there at their side, to help at this extremely challenging time and to ensure that all of the medical staff are fully up to date

Leer más