-
Celebrating European Patients Rights Day
This important day takes place on the 18th of April: it is a marked occasion for open discussion and serves to reinforce commitment to the 14 rights established for…
Continuar leyendo -
We join the International Awareness Day for Rare Diseases and consolidate our relationship with CIBERER
Today, 29th of February 2020, we join the campaign created by the Spanish Federation for rare diseases (FEDER) “Our hope grows with you” to celebrate world awareness day for…
Continuar leyendo -
Winners of the Albert Jovell prize for the #IHAVEUNDRESSED campaign
We were delighted and honoured to receive a prize valued at 1500€ for the #IHAVEUNDRESSED campaign under the category of “A Campaign aimed specifically at raising awareness…
Continuar leyendo -
Actor Antonio Velazquez and Muay Thai world champion, Yohanna Alonso, contributed to raise awareness for EB condition
Dozens of people joined the renowned Spanish actor and the current combat sport world champion, to climb the 1200 m to the top of La Concha Mountain…
Continuar leyendo -
Thanks to the #IHAVEUNDRESSED campaign millions of new people know what it is like to live with this disease
#IHAVEUNDRESSED was launched to raise awareness worldwide for EB, in the hope that the day to day of living with this condition can be made just a little bit…
Continuar leyendo
