Three Malaga based charities join forces to help support their families

DEBRA the Butterfly Children’s Charity, the Cudeca Foundation and the Ronald McDonald foundation join together to organise two fantastic tournaments on the 19th of June and the 4th of July, at the Marbella Club Resort and La Cala Golf Resort, respectiv The aim is to raise essential funding to improve the quality of life for […]

After the success of the Guadalmina event held earlier in the summer, the Butterfly Children’s Charity raised more than €17.000 at the Aloha Golf Club Tournament

The funding will be used to improve the quality of life for families with Epidermolysis bullosa, a rare and currently incurable disease that affects 500 people in Spain.  The charity was delighted to hold this tournament after 5 long months of cancelled events due to the Coronavirus crisis. After months of uncertainty the Butterfly Children’s […]

Winners of the Albert Jovell prize for the #IHAVEUNDRESSED campaign

We were delighted and honoured to receive a prize valued at 1500€ for the #IHAVEUNDRESSED campaign under the category of “A Campaign aimed specifically at raising awareness and developed by a charity in the health sector” More than 400 people attended the prize-giving event at the Nouvel auditorium at the Reina Sofia museum in Madrid: […]

Training Matters: The La Paz Hospital focuses on teaching to improve the care available for people affected by the rare disease, Epidermolysis bullosa

In collaboration with the DEBRA, the Butterfly Children’s Charity, the University Hospital of La Paz (one of the official reference centres for the disease) organized a structured training day for national healthcare professionals, on the best treatment and care options available for patients affected by this relatively unknown rare disease.  During the course of the […]

New Charity Shop opening in Barcelona!

More than 100 people gathered to celebrate the opening of the new Charity Shop in the city of Barcelona. Inspired by the English charity shop concept this new shop is an important way of raising awareness for Epidermolysis Bullosa, providing people with the opportunity to learn about what it is really like to live with […]