Three Malaga based charities join forces to help support their families
DEBRA the Butterfly Children’s Charity, the Cudeca Foundation and the Ronald McDonald foundation join together to organise two fantastic tournaments on the 19th of June and the 4th of July, at the Marbella Club Resort and La Cala Golf Resort, respectiv The aim is to raise essential funding to improve the quality of life for […]
After the success of the Guadalmina event held earlier in the summer, the Butterfly Children’s Charity raised more than €17.000 at the Aloha Golf Club Tournament
The funding will be used to improve the quality of life for families with Epidermolysis bullosa, a rare and currently incurable disease that affects 500 people in Spain. The charity was delighted to hold this tournament after 5 long months of cancelled events due to the Coronavirus crisis. After months of uncertainty the Butterfly Children’s […]
Winners of the Albert Jovell prize for the #IHAVEUNDRESSED campaign
We were delighted and honoured to receive a prize valued at 1500€ for the #IHAVEUNDRESSED campaign under the category of “A Campaign aimed specifically at raising awareness and developed by a charity in the health sector” More than 400 people attended the prize-giving event at the Nouvel auditorium at the Reina Sofia museum in Madrid: […]
Celebrating milestones at the annual Aloha Golf Club Golf and Gala event, supporting people with Butterfly Skin
On the weekend of the 8th & 9th of June the Aloha Golf Club hosted the XVII Butterfly Children’s Golf and Gala event, along with special guests Noemi Jimenez and Danny Hartley. The €41.800 raised will go towards supporting and caring for children with this rare and painful condition. Now in its 17th year this […]
Actor Antonio Velazquez and Muay Thai world champion, Yohanna Alonso, contributed to raise awareness for EB condition
Dozens of people joined the renowned Spanish actor and the current combat sport world champion, to climb the 1200 m to the top of La Concha Mountain in aid of the Butterfly Children’s Charity. The event was the 4th of its kind and raised € 8000: There are over 500 people affected by EB in […]
Training Matters: The La Paz Hospital focuses on teaching to improve the care available for people affected by the rare disease, Epidermolysis bullosa
In collaboration with the DEBRA, the Butterfly Children’s Charity, the University Hospital of La Paz (one of the official reference centres for the disease) organized a structured training day for national healthcare professionals, on the best treatment and care options available for patients affected by this relatively unknown rare disease. During the course of the […]
New Charity Shop opening in Barcelona!
More than 100 people gathered to celebrate the opening of the new Charity Shop in the city of Barcelona. Inspired by the English charity shop concept this new shop is an important way of raising awareness for Epidermolysis Bullosa, providing people with the opportunity to learn about what it is really like to live with […]