“It is really hard, but I take strength from working with a team”

Miriam is one of our greatest treasures.  She is a specialist nurse and is a key member of our team.  With news of the lockdown and the…

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Counselling and its role in the treatment of Epidermolysis bullosa

Counselling plays a very important role in the treatment of patients with EB.  The condition is in many cases degenerative, leading not only to physical disability, but…

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