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“It is really hard, but I take strength from working with a team”
Miriam is one of our greatest treasures. She is a specialist nurse and is a key member of our team. With news of the lockdown and the…
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Counselling and its role in the treatment of Epidermolysis bullosa
Counselling plays a very important role in the treatment of patients with EB. The condition is in many cases degenerative, leading not only to physical disability, but…
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I have learnt to accept the condition as a part of me without letting it control my life
Lena is Austrian; she is 25 years old and has EB. For the last year Lena has been working at the charity helping with our fundraising campaigns, inspiring so…
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