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to help families with Butterfly Skin.

On the occasion of International Butterfly Skin Day, we launched the #TodaUnaVida campaign: an initiative with which we try to highlight the chronic and incurable aspect of the disease.

Javi (2 years old), Mía (5), Victoria (7), Elena (8), Andra (11), Itziar (21), Juan Antonio (37) and Puri (68), through a photographic and audiovisual series , bring us a little closer to the reality with which they have to live day by day throughout their lives.