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Celebrate with us: join the 304 families with Butterfly Skin in Spain
Read more304 families: the most recent campaign launched by the Debra Butterfly Children’s Charity to raise awareness for children with Epidermolysis Bullosa. Known as the most painful condition you have never heard of. EB is a rare and extremely debilitating disease that gives no respite over the festive season for families who have to live with […]
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After the success of the Guadalmina event held earlier in the summer, the Butterfly Children’s Charity raised more than €17.000 at the Aloha Golf Club Tournament
Read moreThe funding will be used to improve the quality of life for families with Epidermolysis bullosa, a rare and currently incurable disease that affects 500 people in Spain. The charity was delighted to hold this tournament after 5 long months of cancelled events due to the Coronavirus crisis. After months of uncertainty the Butterfly Children’s […]
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Celebrating European Patients Rights Day
Read moreThis important day takes place on the 18th of April: it is a marked occasion for open discussion and serves to reinforce commitment to the 14 rights established for European citizens. These rights were established to encourage the cooperation between the different health care providers and to reinforce the degree of protection for patients affected […]
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“It is really hard, but I take strength from working with a team”
Read moreMiriam is one of our greatest treasures. She is a specialist nurse and is a key member of our team. With news of the lockdown and the rising number of people affected by COVID-19, Miriam joined the group of front line health care professionals fighting against the virus. We are very much looking forward to […]