LIVING WITH BUTTERFLY SKIN
To celebrate International Butterfly Skin Day, we are launching ‘Living with Butterfly Skin’. A video that portrays the reality of the day to day for Adria: a 5-year-old superhero with Butterfly Skin, who demonstrates immense courage and overcomes the many challenges of living with this condition. You can also listen to the voices of his family and the healthcare team that support him.
Please, share this video, and become a member to help families like Adria’s.
Thank you very much for your help!