Newv-borns with Butterfly Skin

When a child is born with an unknown disease and areas of the body without skin, joy is quickly replaced by fear and confusion. One of the most joyful days in the life of any new family is transformed. Questions abound and these are often left unanswered.
Through the “Born with Butterfly Skin” programme, our expert team travels to visit the family alongside the medical professionals, in order to provide all the information and support they will require.