RESEARCH
We are committed to research
We want to end the suffering that EB brings to families.
Research and funding are essential to creating a world where no child has to suffer the constant physical pain and the tremendous challenges that families with Butterfly Skin face every day.
Apostamos por la investigación
En DEBRA Piel de Mariposa, apostamos por ella a través de tres vertientes:
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Bringing the results of research closer to our families
Our researcher Nuria Tarrats concentrates her efforts on bringing the science closer to our families. We make sure they are kept up to date with all of the latest news and developments on medical research and clinical trials.
¿Quieres impulsar la investigación?
Research strategy
We are a part of the DEBRA international network
We join forces with other organisations specialising in rare diseases
We attend and contribute to research seminars and conferences
Share4Rare
We attend and contribute to research seminars and conferences
We have invested over 450.000 euros in research since 2016.
If you are interested in finding out more about our current projects or if you would like to contribute to finding a cure please write to us at info@debra.es