Supporting health care and medical teams
Improves the quality of life for our families
Projects
A big part of what we do is to provide medical information, guidance and advice for medical teams and health care practitioners.
We support and advise the medical team at the La Paz Hospital in Madrid and the Sant Joan de Deu in Barcelona.
We provide advice and information at conferences and universities to improve understanding and raise awareness to ensure that families are better supported.
Photo: El Confidencial, Carmen Castellón.
Can we help you?
If you have a patient or newborn with EB and you would like support and advice
Our specialist team of nurses, psychologists, social workers and researchers are here to help. If you are a family with Butterfly Skin and you need our help, please contact us now.