CHILDREN'S CHARITY
We are an organisation which exists specifically
to help people with Epidermolysis bullosa.
A non profit organisation dedicated to
improving the lives of people with EB and
their families in Spain.
to help people with Epidermolysis bullosa.
A non profit organisation dedicated to
improving the lives of people with EB and
their families in Spain.
We need your support to continue to help
children with EB and their families.
children with EB and their families.
Make a difference and visit our shops to discover
wonderful new and nearly new quality goods.
All sales and donations contribute to supporting
Butterfly Children.
wonderful new and nearly new quality goods.
All sales and donations contribute to supporting
LATEST NEWS
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New gene therapy for EB
Read moreAfter publication of the article in “Nature Medicine Magazine” on the new gene therapy treatment for recessive dystrophic EB, DEBRA are delighted to bring you further information on this exciting new discovery. What is B-VEC? This is a non-invasive gene therapy, which is applied directly to the skin. The therapy uses an inactive virus (HSV-1) […]
